Quick back to back posts, I know! But we can use some prayers. The Docs made rounds a little bit ago and today is going to be full of changes. They took the pain pump away minutes ago and they are reintroducing the oral meds (which he calls “poison”). They are also reducing his TPN, and lastly, they are changing out his chest port needle. That last one is the one that I am most anxious about. As you all know he has such a hard time with access and de-access and we are about to do it all in one day. A matter of minutes apart, actually. And all of this with a kid that has a very tender belly and a scar that almost circles his front and side. Rounds took place and in their calm, yet forceful Doc way, they said “Mom, this is how we get you all home.” DUH! Followed with, “You just have to make him do it.” These are not our Docs, they are the young, rounding, barely out of school Docs… AND HAVE NO KIDS! It really makes you feel about 3 inches tall but madder than all get out. I would really like to hog-tie a few of them, throw them in the elevator and push the alarm button. Do they not know that we want to go home worse than they want us to go home? The anxiety is building for Mommy. And to make things more tense, Saraben (our Child Life Specialist), Jake’s comforter, my back-up, my friend and help, the one who eases my nerves as much as Jake’s, is not here today. CRAP!!!!!!!!!!!! Honestly, I’m trying hard to hold back the tears and just remember to take it moment by moment. I 
know that this day will pass and tomorrow will be a better one, but if you will please pray that I keep my hillbilly, hog-tying, eye rolling, want to curse you, self in tack, I would be so grateful. And bigger prayers that the de-access and re-access go OK, that we don’t hurt Jake in the process of trying to keep him safe and hold him down, and that he isn’t terribly traumatized for the rest of the day. These are just a few of the things that we cancer families live with and why we need better treatments… better yet, a cure! Please, please, pray for that too!!!!!
Jacob's Fight against Neuroblastoma
Praying for all of you today, and every day.
“But the men of Israel encouraged one another and again took up their positions where they had stationed themselves the first day” Judges 20:22
We take up our positions of prayer, where we have been stationed for the last seven months. Love you….
We lift you and Jake before the Lord for peace, tranquility and the ability to withstand all that Jake is going through. May he learn that this is a game he and the doctors play to heal his sweet body. May Jake be the one that overcomes all this and begins to look forward to each thing that must be done to bring about the healing we are claiming from the Father in Heaven. May you find a postiive way to approach every event, to encourage him and find peace within.
“Let all that I am praise the Lord; with my whole heart, I will praise His holy name. Let all that I am praise the Lord; may I never forget the good things He does for me. He forgives all my sins and heals all my diseases. He redeems me from death and crowns me with love and tender mercies. He fills my life with good things. My youth is renewed like the eagle’s!” (Psalm 103:1-5, NLT) In Jesus Name we lift up this family! And the staff at the hospital!
Praying for you, hope it all went well. Please tell us soon!
Praying for you today and every day. I am sorry it is so hard for you both.
I am/will be praying for Jacob, you, and the rest of your family tonight. The morning always brings hope and comfort of a new day. All things are new.
Praying for all of you! Love you and God is with you!
We are covering you all in prayer!!!
May today’s events pass as best they can for Jake & family. May he be one day closer to his road of recovery. Amen
Praying for you and Jake today, Mardon. Hard days really stink, even when you know tomorrow will be better. You are a wonderful mom and warrior for Jake and his treatment. Hang in there and know that God is with you even when it doesn’t feel like it. Much love and continued prayers.
Traci
that the angels hold firm to Jake, providing no movement in the procedures and Jesus whisper to him “…I’m here, be still…”
for a Mom’s love to wash over her anxiety and bring her, her own “still”.
praying right now
let it out! you are human and everything you feel is real and justified — you handle it a million times better than most! you are a blessing you are a mom you are strong you are a fighter/ warrior – you will win!
God, give them both the strength and calm they need. Amen.
Just let me know if you need help holding the doctor’s down! 😉
Praying…….. (BTW…I think they might need to be hog-tied – just sayin’)
You ask for as many prayers as you need. No amount if prayer is too great. Xoxoxo for you both.
Connie Arrington