Sometimes the fear creeps in. Most days, I have this down… pressing forward, nerves in tact, smiling sweetly – I’m told. But somedays I break. It seems that tonight, today, has been one of those days. Today, Jake was wonderful. He was bouncy and playful and full of life. Until the meds knocked him out, he played and played with one of his little friends. In fact, he pretty much took a doctor DOWN as he and his friend were big wheel racing thru the infusion room (that Doc will pay better attention in the future when he hears wheels burning up the hallway.) Other than the usual, port access and long day, it was a pretty good day for him. But for me, it’s been emotional. I met a very special mom and her little boy. He’s just a year older than Jake and I can’t get him out of my mind. He was having such a hard day and he looked so worn out. He’s been fighting for a while. In 2010 he was diagnosed, for the first time. He made it to the other side… NED! Then, the cancer returned. Neuroblastoma, just like Jake. It’s such an angry, tortuous disease. It stalks and lies in wait while it quietly ravages the body of your child. I talked to her for a while and she was kind, and tired, and sad. I could tell in her sweet smile, she is so, so sad and her hope is being pushed to it’s limits. Tonight I just can’t dry my eyes, for my heart pains for her. As a mom, my heart truly aches for her… and as a mom of a cancer kid, my heart has a depth of hurt that I can’t ever put into words. I have prayed for her all day. As she held her son in her lap this afternoon, I watched and held back tears as I sat and held my sleeping son. So tonight, I ask you all to pray for this family. I didn’t ask if I could post their names so I won’t, but God knows who they are. I ask you all to pray for her son’s healing, for good days, and for hope to be strengthened within her. She knows God, we talked, and I know she knows Him well. But I just feel the need to ask all of Jake’s prayer warriors to lift her up and ask God to fill her up. This is so hard. This cancer life is SO HARD! Tomorrow we are back at TCH for Jake’s CT scan to prepare for surgery. I’ll post again, with a more positive message, I promise. “The Spirit helps us in our weakness. We do not know what we ought to pray for, but the Spirit himself intercedes for us with groans that words cannot express.” Romans 8:26
Jacob's Fight against Neuroblastoma
Prayers for them as well, especially for a good day to restore hope & faith.
Every friday during Lent we have the Stations of the Cross. I always shed tears as if I am hearing The Story of Our Savior’s sufferings for the first time…know that you are not alone in your tears as we weep for Jake and all of you in your suffering. I wept with the story of your friend’s long fight and prayed that God heal all of the children. We love you guys and pray always for the day that I know will come. XOXO <
Mardon, you..your family..and Jake are all in our hearts in our prayers. I am so so sorry for all you all are having to go through. Please know daily we pray and hug you all!! Today both my kids are wearing “fight cancer” shirts for all who are suffering and they even said mom this is also for baby Jake! So many people are praying for you all and your friends – daily!
God Bless and I hope and pray one day -all of you have more smiles than tears!
Amen! Praying in agreement with you.
Sweet Mardon. You are allowed to have a down day.
I think that God placed you in the right place yesterday for that mom. She needed you.
I’ll be praying for this family as well as yours today.
Hugs♥
I love you mom.
Praying for this little man and his family and of course you guys are in my prayers every day all day long. Kisses.
Mardon, May God reach out and touch your friends, and may they be filled with His strength, His peace and His love. May that little boy be strengthened and his body drive out the horrible cancer that is attacking him, just the same way God healed the blind and made them to see, and made the lame to walk. May our loving Father in Heaven reach down and touch you and your family also, filling you all with a healing faith so that Jake may also be a new whole little boy, uneffected by cancer. May tomorrow be bright and filled with joy for you, peace and happiness. In Jesus precious Name we pray…
Praying!!!!!
I will pray….and pray some more…. They are on my heart … every little precious baby fighting cancer is on my heart!
I will especially lift up this family tonight! xoxo
This might not seem very positive to some but the fact that Jake had a good day and that he is still alive pressing forward makes me feel positive. I pray for every family with cancer children but with Jake happy I’m happy! (:
Bless your precious heart! You are right – CANCER SUCKS! I know first hand how hard it was as a wife. I can’t imagine the pain you must feel as a mom. Please know I am praying for you and Jake daily. HUGS.
Shelly Henricksen Kessler
Love you all.