We March On

Today we are home! We continue to have the nausea breakthroughs and he’s definitely slower than usual but when the meds hit his system and hold for a bit, he’s happy and playful. He made it to the game room again the day before we left for a few minutes and was able to play Wii with a his brother and sister and friend, Patrick. Jake didn’t stay too long but he was able to play for a few minutes. By this stage of the chemo treatments, his little body is tired and worn out. One of my oldest, dearest BFFs, Ali, visited Monday. It was so good to see her and she brought cupcakes! She’s a baker by profession… as in an amazing, super talented, cake maker. Not only are her cakes and confections beautiful but they are so, very, YUMMY! She just did another one of our BFF’s parties last weekend, check out the pictures – the table was full of glam and so delish. So if you need cakes and table/party decorating seek her out at Confectionately Yours, Ali’s Cakes (plug plug!) Also, my wonderful MOPS group sent dinner in the form of the best salad I’ve seen in a long time… Thank You! And thank you to Sarah for dropping it off. It’s so nice to be home… we will be back at TCH Thursday for blood draws and transfusions but for now, I share Jake’s sentiment as he said this morning as he woke up, “I lub my bed!” I also want to thank everyone involved in the Bake for Jake Sale this Thursday night. We are so thankful for all you are doing and I can’t wait to see you all and give you big hugs. For now, we have three and a half weeks to get Jake’s counts up and his lungs clear in time for surgery. The new date is March 27th. He’ll spend most of that time neutropenic and isolated as his body works hard to prepare for him to go to war in a

big way. Unknowingly, our little warrior will be suiting up. This surgery won’t be the biggest procedure he will endure but it will be so very HARD on his little body and the biggest yet – so we march on! We ask you to keep him in your prayers over the next few weeks… that his body will respond in a mighty way to all of the chemotherapy he’s been through, for his lungs to heal, and for us all to prepare physically and emotionally for this next step. “For you who revere my name, the sun of righteousness will rise with healing in its wings,” says the Lord. Malachi 4:2

You know we’re home when I share songs… so here ya go… this is our song of the day, turn it up LOUD and sing with him! Hello My Name Is, by Matthew West http://www.youtube.com/watch?v=mJlCj9_Sfj0 BTW… Jake’s middle name is Grayson and from the day he was born we would rock and rock, with him nestled in my neck, singing Amazing Grace. The song references this song as he sings, “Hello, my name is child of the one true King, I’ve been saved, I’ve been changed, I have been set free. Amazing Grace is the song I sing. Hello, my name is child of the one true King!” Check it out and turn it up!