Came and Went

So our first inpatient holiday came and went and we were released late Friday afternoon. Our special weekend with all of our visions and plans and expectations got off to a rocky start but it definitley finished well. We were able to have a belated Thanksgiving dinner on Saturday with my mom, and Papa (Henry’s dad). We did get the Christmas tree up and although we weren’t able to celebrate Meg’s birthday as her family was under the weather, we were home in time for Ryan’s. And… we had a wonderful visit from dear friends, the Byrd family. Davis and his baseball team won their season and Davis wanted to honor Jake with his trophy. Davis has been sharing Jake’s journey with all of his friends and handing out bracelets… just look at this awesome picture of all these handsome and excited boys with their trophies and their “Make Cancer Extinct” Jake Bracelets. They have been praying over Jake as a team… what a tremendous thing for this mom to hear, that these young boys in Midland, Texas pray over our son regularly. I picture angles circling Jake each time there is a prayer said for him and rejoicing when it is from children for children’s prayers are the most inoncent and special. It was such a happy visit and I loved how Davis just sat right next to Jake and started playing, never missing a beat! Some of his friends are stand-offish. They don’t know what to say or do with him… a little afraid… he doesn’t look like the Jake that they know. Davis came in and just started playing and talking and laughing with him. As I’ve played those visions over and over the past couple of days, it has made my heart so very happy. These are the little blessings of goodness that you find in days like these… thank you Davis! We went in yesterday for labs and were relieved that it was a short day and his numbers are on the rise. That means we head back in Thursday for Round 3. It’s already time again. This round will be new chemo drugs. So far we’re 2 for 2… 2 chemos, 2 unplanned neutrapenic fever hospital stays. We’re hoping that this next 3 weeks goes better. It will be another 72 hour infusion and we ask your prayers over his stay. The intensity and types of drugs that these children endure is often more severe than that of adults. Their little bodies somehow handle it better than our older, more contaminated bodies, so they hit them with all they have. It’s always tricky and dangerous. The side effects can be horrible, even permanent and lifelong. The risks are always high and we walk in never knowing how his body will handle these treatments. Even the same drugs can have different outcomes… it really is all a big lab experiment. This treatment puts us out on Monday, which means by our tentative schedule we will be back for Round 4 December 20th with a release of the 24th, Christmas Eve. What a gift that will be, to be home for Christmas. Of course, it’s all day-by-day. We will be praying for a Christmas at home for sure. But we have a friend that won’t be, and I ask

your prayers for a little boy named Charlie. I’ve mentioned him before. He started his stem cell transplant today. He will be in isolation for 30-45 days, that means Christmas will be spent away from his home in TCH. As Charlie’s parents said in his blog, “Charlie is going to walk a path that few others have to walk. He is going to walk to the edge of death, and from there he will be rescued back”. I can only imagine the fear and anxiety that his parents will be facing, the readiness for this part of the journey to be over; we too, will soon travel this path with Jake and my chest tightens and eyes swell just writing those words. It is something we know is coming, it’s tucked away but it lurks and we try not to think of it too much yet, for we must push through these early days – that’s a hurdle we’ll jump when we get to it. Right now, I pray for strength for Charlie and his family. Please pray with me for Charlie. Please pray each day for him. Through their waiting, I pray for Charlie’s healing, for comfort, and for the BEST Christmas ever… for our Healer to grant them their greatest Christmas wish. “I am still confident of this: I will see the goodness of the LORD in the land of the living. Wait for the LORD; be strong and take heart and wait for the LORD.” Psalms 27:13-14.