Jake is sitting up! He’s been down and out, flat on his back, curled in fetal for days. But today he was sitting up watching movies with Daddy. He’s weak and he’s not eating or drinking but he’s up. We gave him a trim and it’s not pretty! He sat in my lap and we started cutting. His hair was shedding all over and it was getting in his mouth, down his shirt, itching everywhere and there were some patchy, balding, rubbed off spots, so we needed to clean him up a bit. He has been really upset with the thought of cutting his hair but the messiness and aggrevation turned to him being OK with getting it out of his way. A friend told me that would happen. I’m glad I didn’t push too early, with all of the decisions that have been taken from him, he was able to make this one. I will say, his hair masked his sickness in many ways. Now you see his beautiful eyes and they tell the tale of the past two weeks. You see his small frame and how much smailler he’s become. Our prayer this week is for the mouth and throat ulcers to heal so he will eat. There is word that we may go home in a few days with an IV. That is scary but he needs nutrition. And at this point, we’ll take it…it’s all about baby steps and we want him home!
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