Joy

As we travel this windy path, we curve and swerve and change direction regularly. For the most part we are still on track with a few little changes here and there. We saw our Docs on Thursday and the new schedule is to go ahead with chemo 5 admission on Jan 24, and after his counts recover, we will go in for his MIBG scan. From there, surgery is scheduled for February 13th. Of course, all of this can change at any time and is completely dependent on how his counts recover. They will do the MIBG just a couple of days before surgery to allow chemo 5 to have some impact and give time for  count recovery, as we can’t bring him into radiation neutrapenic. Radiation sees too many kids for too, too many reasons every day so Jake needs to have a bit of an immune system. He’s looking great! His numbers are bottoming right now, he’s neutrapenic, but his spirits are soaring. This is EXACTLY what we want. I have such peace that we are going to see good things on his scan. And he’s had some really good playtime to keep his spirits lifted. He was able to play with his friends, Eryn and Allen, Wednesday night. And yesterday we had Lady Goo Goo Ga Ga (aka Angel Jeanne) and Dr. Bill come play. The belly laughs were pure joy! All three of them were all over the floor laughing and playing fighting dinosaurs. Jake was giving direction of how the scenarios should go, complete with dialog and names. My heart is happy to see him so full of joy and Mrs. Jean ALWAYS brings lots and lots of joy! This was in my reading this morning and it says it all… “Now the God of hope fill you with all joy and peace in believing.” Romans 15:13