{"id":633,"date":"2012-11-21T16:54:25","date_gmt":"2012-11-21T23:54:25","guid":{"rendered":"http:\/\/jacobhickford.com\/?p=633"},"modified":"2012-11-21T18:40:55","modified_gmt":"2012-11-22T01:40:55","slug":"unexpected-admission-again-sigh","status":"publish","type":"post","link":"https:\/\/jacobhickford.com\/?p=633","title":{"rendered":"Unexpected Admission, Again (sigh)"},"content":{"rendered":"

\"\"<\/a>Sadly,\u00a0the ER was calling our name last night, and today we sit in TCH,\u00a0AGAIN, with no discharge in sight.\u00a0 Yesterday we\u00a0were in Clinic all day with platelet and blood transfusions\u00a0so we could “juice up” for the weekend.\u00a0 Jake looked great, in fact everyone was surprised that we were having to transfuse.\u00a0 His color was good, he had energy, he was smiling and eating, but his platelets were 5, his hemoglobin was\u00a07.1 and his ANC was a BIG fat ZERO.\u00a0 So we transfused and at the end of the day,\u00a0we happily left to prep for a weekend of Thanksgiving, Meghan’s birthday and Ryan’s birthday, plus Two Mom is here to visit… a\u00a0full\u00a0weekend of at-home stuff, including putting up the Christmas tree (which Jake has been so excited about).\u00a0 Then he started getting warm, and a bit warmer, and a bit warmer, and HOT.\u00a0 CRAP!\u00a0 It’s pure anxiety as you watch the numbers, knowing there is nothing that you can do.\u00a0 Jake’s body can’t fight fever, he has absolutely NO white blood cells\u00a0and there is no way that we can get it down on our own.\u00a0 Of course we tried anyway with lots of fluids, undressing him, making him flap his arms so he could air out his underarms – just in case – you ever know… and he thought this was funny.\u00a0 It’s crazy, for a kid whose fever was going up, he was\u00a0cooperative… but he knows he doesn’t want to be here unless he has too\u00a0and he was doing what ever we asked with no questions, no complaints.\u00a0 We must have taken his temp 100 times and with 4 different\u00a0thermometers… wishing for just\u00a0one of them to say something different.\u00a0 Eventually we looked at each other knowing there was no option, fever means hospital.\u00a0 I have to admit, I’m so\u00a0disappointed… and sad… and pulling\u00a0a big ‘ole\u00a0“woe is me”.\u00a0 We were so looking forward to this weekend and Jake has done SO WELL this round.\u00a0 This just doesn’t make sense, he looks amazing compared to what\u00a0neutrapenic\u00a0fever\u00a0looked like last time – and this makes 5 hospital stays in 7 weeks.\u00a0 We have\u00a0so much to be thankful for… I know this.\u00a0 But spending Thanksgiving and the weekend here, away from everyone, away from our home, and our dinner, and our dinner table has me feeling weepy.\u00a0 As they rolled\u00a0Jake from the\u00a0ER to his room\u00a0in the early hours, he didn’t even open an eye.\u00a0 He was wiped out,\u00a0so when\u00a0he woke up this morning and realized we were still here, there were tears, big crocodile tears and quiet sobs to go home.\u00a0 My heart knows what he’s feeling.\u00a0\u00a0The craziest\u00a0part of this\u00a0stay\u00a0is that we aren’t even on our floor.\u00a0 Our home away from home is the 9th Floor\u00a0– Oncology.\u00a0 Cancer patients\u00a0are to be housed on the 9th Floor, no matter, but it’s sick season and the floor and hospital\u00a0are FULL.\u00a0 Our 9th Floor home with familiar nurses and playful hallway with special friends is full.\u00a0 So we sit on the 14th Floor of West\"\"<\/a>\u00a0Tower –\u00a0the Respiratory\u00a0Floor… home of RSV and pneumonia and other respiratory\u00a0illnesses.\u00a0 This has us completely isolated, signs on the doors, docs and nurses\u00a0entering\u00a0in\u00a0full cover and masks.\u00a0 We truly appreciate\u00a0their caution and care for Jake’s situation and can’t\u00a0help but think that they too would prefer to be home.\u00a0 It’s especially hard because\u00a0he\u00a0actually feels\u00a0pretty good\u00a0and could be riding the trikes rather than\u00a0being cooped up if on the 9th Floor. \u00a0The worst part is that the playroom is right across from our door… we can see it through\u00a0the glass window\u00a0in our door,\u00a0we can hear the kids.\u00a0 Our energetic toddler wants out!\u00a0 He wants to play too.\u00a0 It’s scary, really.\u00a0 This is NOT the floor for a\u00a0neutrapenic\u00a0cancer patient with no immune system.\u00a0 Something like pneumonia can bring a\u00a0multitude\u00a0of horrible things for him and\u00a0I’m afraid to even go to the family area where the ice machines and coffee are. There are kids and family members hanging out, some of the kids are coughing and they are in gowns so you know they are here for a reason – what if I bring something back into the room?\u00a0\u00a0 They too are nervous and are trying to get us moved.\u00a0 Several different hospital reps have come in today to say\u00a0they are working on getting him to the 9th.\u00a0I am appreciative of their effort and constant communication. \u00a0Right now, we have markers that we have to check off in order for us to go home… 1. Eating Drinking, Peeing – check.\u00a0 2. Fever free for 48 hours\u00a0\u00a0 3. Waiting on blood cultures to come back. \u00a04. ANC (white cells)\u00a0to\u00a0recover.\u00a0 (This should start rising anytime since we are 10 \"\"<\/a>days out from lst chemo, but because he may be fighting something, it\u00a0may be delayed.)\u00a0 This stinks!\u00a0Look how good he looks?!! \u00a0See… woe is me, woe is us!\u00a0 What I should\u00a0be doing is praying for these families who are here too and be thankful that we have a room and aren’t down in the very crowded ER.\u00a0 I can’t seem to do that right now, I just want to go home, I just want to take my baby home, I want to\u00a0spend time with my\u00a0mom, eat\u00a0Henry’s\u00a0delicious Thanksgiving\u00a0dinner, and decorate our Christmas tree.\u00a0 So, I call on\u00a0our sweet\u00a0friends and family…\u00a0you, our\u00a0loving prayer warriors to pray for all these families who also would love to be home and are missing their families, their traditions, their visions of what should be.\u00a0 Tomorrow will be better and we’ll be thankful, for deep down I do know there is so, so\u00a0much to be thankful for.\u00a0 But\u00a0today I’m pulling a Scarlett for “tomorrow is another day”.<\/p>\n","protected":false},"excerpt":{"rendered":"

Sadly,\u00a0the ER was calling our name last night, and today we sit in TCH,\u00a0AGAIN, with no discharge in sight.\u00a0 Yesterday we\u00a0were in Clinic all day with platelet and blood transfusions\u00a0so we could “juice up” for the weekend.\u00a0 Jake looked great, in fact everyone was surprised that we were having to transfuse.\u00a0 His color was good, … <\/p>\n

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