{"id":3321,"date":"2014-03-24T12:50:22","date_gmt":"2014-03-24T18:50:22","guid":{"rendered":"http:\/\/jacobhickford.com\/?p=3321"},"modified":"2014-03-24T17:17:49","modified_gmt":"2014-03-24T23:17:49","slug":"faithofachild","status":"publish","type":"post","link":"https:\/\/jacobhickford.com\/?p=3321","title":{"rendered":"Faith Of A Child"},"content":{"rendered":"

\"2014-03-17<\/a>Here we go again\u2026 scan week. Can I tell you how much we DO NOT like scan week?? We are praying that we will see some type of response to the last two treatments, or at least stable disease. Please pray with us for response\u2026 for STABLE disease\u2026 for NOTHING NEW! We elected not to have his Bone Marrow Biopsy this go-round. We all agree that with the last tests showing so much\u00a0disease, the marrow will still\u00a0be diseased, so there is no reason to sedate and cut him, just for confirmation\u2019s sake. We\u2019ll start Wednesday morning, bright and early on the 5th<\/sup> Floor of the Clinical Care Building for Jake\u2019s hearing test. Then we\u2019ll jump to the 14th<\/sup> Floor for labs, his IV, and a possible transfusion. Next we\u2019ll head over to the 1st<\/sup> Floor of West Tower for his CT and we\u2019ll finish off the day on the 5th<\/sup> Floor of Women\u2019s Pav for his MIBG injection. Bet ya didn\u2019t know TCH had that many buildings \u2013 and that\u2019s not\"2014-03-18<\/a> even all of them! We\u2019ll head back Thursday morning for his MIBG scan. That\u2019s the really long one and it\u2019s hard for an adult, much less a five year old. MIBG is 50 minutes of laying perfectly still while that machine is an inch from his nose, without sedation – that\u2019s his choice by the way. He doesn\u2019t like to be sedated any more than he has too, he doesn\u2019t want any more needles than necessary, and waking up from sedation isn\u2019t his cup of tea. All the way around, it\u2019s a lot to do in two days and he is so brave! He has taught\u00a0us so much about courage and trust. He faces these tests with little boy faith that he will get better and that Mr. C will be gone one day. And I must thank all of you as your cards provide\u00a0hope and big plans for\u00a0play dates\u00a0when he is well.\u00a0That innocent trust stems from constant prayer that he will be healed. There is no doubt in his mind that he will indeed, be cancer-free one day. He expects it! Isn’t that the way it’s supposed to be… to expect our God, the Maker of Miracles to deliver? He can and he wants\u00a0us to believe that and we should… Jake does. This little Handsome can sure put things into perspective some days. So we\u00a0follow his lead and\u00a0it is with that\u00a0same faith\u00a0that we march on.\u00a0With that in mind, we have narrowed down to two options for Jake, one is in California, the other is in Michigan. The scans this week will be the first step in direct\"Ground<\/a>ing us toward which path we take. So many things must still fall into place. We will do one more treatment here at TCH next week while we get paperwork finalized. Those pesky platelets continue to be the driving force and will have\u00a0the final say. If we can get them to stabilize we will head one direction, if we can\u2019t, we head in another. But even with that said, he has to be selected for these trials. There are only so many spots and so many children. We have faith… God has opened every door so far, and though there have been many\u00a0detours, we believe that\u00a0He will continue to direct us in Jake\u2019s treatment. One way or another, Jake will be healed. We want it soon and we want it h\"J<\/a>ere but as I sit here writing these words an e-mail hit from one of my besties, Sarah, reminding me that… \u201cOur destination is home with our Father in heaven. It is easy\u00a0on this journey to lose sight of our destination and to focus on the detours of this life instead. This life is only the trip to get home.\u201d Bob Snyder\u00a0<\/i> Whew… that takes my breath away and while we will not loose HOPE and the miracle for\u00a0lots more\u00a0time with him here, there is comfort in this thought. As for the rest of the household, the kids went back to school this morning after a week of spring break. And it’s crazy how even when we don\u2019t have to be at the hospital, we are at some kind of doctor\u2019s office. Today and tomorrow we will be at the oral surgeon for Emma as she has a blocked salivary gland that has produce\"Jaq<\/a>d a huge cyst-looking thing under her lip. Poor thing has to have it removed \u2013 ouch!\u00a0\u00a0That will NOT be fun. We\u2019ve stayed pretty isolated lately trying to keep Jake healthy. All the upper and lower respiratory stuff going around is so dangerous for him but we were able to attend an event hosted by Ground Up and Ball & Chain Crossfit. It was the Battle of the Boxes II and it is the second time they\u2019ve honored Jake with a fundraiser. It\u2019s so exciting to go watch these athletes challenge themselves and each other. Unfortunately we had to miss the NFL\/MLB \u00a0Go GOLD photo shoot this year. As we began driving into town that morning, the rain began falling and we just couldn\u2019t risk Jake getting sick. But even in the rain, it was a success and made the news that night!\u00a0 Speaking of TV, for those of you that watch The Little Couple on TLC, Jake\u2019s room sign was featured. That was really cool!\u00a0 And there are a couple of events coming up that we\u2019d like to share. Monday night there is a fundraiser at Fish Tails in Atascocita for our friends of the Jaquelyn Sky Foundation. Jaquelyn\u2019s family is movin\"Grant<\/a>g and rather than selling their home they will use it to provide housing to out-of-town fighter families that are traveling to TCH for their child\u2019s cancer treatments. What an amazing blessing and mission!\u00a0 If you can make it out, please do. And if you can\u2019t, but you would like to donate household\u00a0items or donate financially, I\u2019ve included their website. www.thejaquelynskyfoundation.com<\/a>\u00a0\u00a0 For our Dallas\/Ft Worth\u00a0friends, March 29th, is\u00a0the 7th Annual 5K\/1K Neuroblastoma Walk benefiting Cook’s Children’s Hospital.\u00a0You’ll remember that is where Jake spent a week locked in a room undergoing MIBG radiation treatment. One of my dearest childhood friends, Stacey,\u00a0has a group walking on Jake’s behalf. If any of you would like to join them, I’ve included the official walk page http:\/\/nbwalk.org\/default.aspx<\/a><\/strong>\u00a0 and the FB Dino Jake team page is \u00a0https:\/\/www.facebook.com\/events\/285210364977343\/?ref=2&ref_dashboard_filter=upcoming<\/a><\/strong><\/em>\u00a0On April 26th<\/sup>, our friends at Ground Up Athletics\u00a0are also honoring our friend, Grant Wahle, in his battle with Leukemia with a 5K event. We had so much fun at Jake\u2019s 5K and it\u2019s perfect weather for an event like this. We\u2019ll be there and hope you will too!!\u00a0 Here is the link to get registered\u2026\u00a0 http:\/\/www.groundupathletics.com\/ground_up_register.html<\/a> \u00a0And last, our friend Navid from ProJeKT 3000 is hitting the pedals once again on April 29th<\/sup> to ride for pediatric cancer kids. His event is called 24 de Cure and he’ll ride for 24 hours straight, 300 miles, to raise funds. Check out his video as he is quite the advocate (Jake makes a tiny cam\"24<\/a>eo in there too!). https:\/\/www.youtube.com\/watch?v=djD-jq2yTKc<\/a> \u00a0So there you are\u2026 many things to bring awareness!\u00a0 We ask for prayer over all that we have going on with the next leg of Jake\u2019s journey and over all of these events\u2026\u00a0 that they are all successful, that eyes are opened, hearts are changed and people are moved to help bring a cure! \u00a0And as I wrap this up, I leave you with the song playing behind me; I Am Holding On To You<\/em> by David Crowder https:\/\/www.youtube.com\/watch?v=pYR5A-tRKKo<\/a><\/p>\n

Create in me a pure heart, O God,
\nand renew a steadfast spirit within me. Psalm 51:10<\/i><\/b><\/p>\n","protected":false},"excerpt":{"rendered":"

Here we go again\u2026 scan week. Can I tell you how much we DO NOT like scan week?? We are praying that we will see some type of response to the last two treatments, or at least stable disease. Please pray with us for response\u2026 for STABLE disease\u2026 for NOTHING NEW! We elected not to … <\/p>\n

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