{"id":3185,"date":"2014-02-19T13:23:45","date_gmt":"2014-02-19T20:23:45","guid":{"rendered":"http:\/\/jacobhickford.com\/?p=3185"},"modified":"2014-02-19T13:28:45","modified_gmt":"2014-02-19T20:28:45","slug":"3185","status":"publish","type":"post","link":"https:\/\/jacobhickford.com\/?p=3185","title":{"rendered":"Time"},"content":{"rendered":"

\"2014-02-16<\/a>I have to take a deep breath as I begin this as it’s taken me days to finally sit and write.\u00a0Things are not good. Jake’s disease is\u00a0growing stronger, much bigger. He’s in good form but there is just more and more with each scan, each biopsy. Jake’s scans have come back pretty bad and we’re in a really\u00a0hard place. His liver spots are indeed bigger and there are more. And worse, the one tiny spot in the lung from six weeks ago has grown to more than we\u00a0want to\u00a0count. His platelets are still too low for chemo and the reason they don’t usually go forward with chemo when low is because it\u00a0can bring\u00a0on tAML but we are doing some chemo anyway. There’s more to it but that’s enough to deal with. Time is the ultimate goal for a\u00a0cancer patient, but sometimes time can also be the enemy and because of how quickly things have changed in just six weeks, we don’t have time to get him to another hospital for a different trial right now – that takes time to get everything in order – to the tune of a couple of weeks to\u00a0a month with all the red ta\"2014-02-12<\/a>pe that goes along with these trials and moving\u00a0his care.\u00a0We will do two rounds of this and in\u00a0the meantime we’ll see if another trial will even consider him. We’re still praying with everything we have that something comes of this. This chemo isn’t as strong as the others he’s had so we don’t even know if it will be worth what we are putting him through but if you look at him – he’s doing so well, so\u00a0how can we not? BUT he’s having these throat clearings, kind of\u00a0like a cough but not deep, it’s the cancer in his lungs. He’s pale and he has dark circles under his eyes at times. There are signs everywhere that it’s growing and he’s just fighting and fighting. And we are too – we will NOT\u00a0STOP!\u00a0 He really looks so good, it’s just unbelievable.\u00a0 He’s been granted a Make A Wish trip to Disney and they called earlier in the week to say we would go at the end of April. This morning they called to say it h\"2014-02-17<\/a>as been moved up to next Wednesday. It’s a bittersweet adventure but one that our family is looking forward to and we are so thankful that he’s getting to do this.\u00a0We’ve been inpatient since Friday night and are being discharged later tonight. He’s done well this week as Kate was with us\u00a0for a few days\u00a0and we had some welcomed visitors. He hasn’t had these two chemos before… Temodar\/Irinotecan (or as Nurse Stacy put it “I run to the can”). It’s supposed to bring on massive diarrhea. So far, none, but they say it’s coming and it can be pretty severe and dehydrating. So we have to pray that it\u00a0is milder than usual so Jake can get on that plane Wedne\"2014-02-16<\/a>sday morning. He’s starting to exhibit that “chemo brain” behavior… the agitation and fussiness of the drugs in his system.\u00a0 Hopefully a little time in the magical world of Disney will offer some relief. I’ve said this so many times but it’s true… we are, where we are, because you continue to keep our family lifted in prayer. For all the blows\u00a0Jake continues to take,\u00a0he is laughing and playing, hanging upside down, and telling fart jokes because that’s what five year old little boys do.\u00a0 His favorite thing this week has been an Olympic skating vid\"2014-02-16<\/a>eo that I’ll share with you so that you can enjoy it just as much as we have (wink!). He’s watched it over and over and OVER, and each time he laughs like it’s the first time he’s ever seen it. You’ve probably seen\u00a0it posted all over Facebook, but if not, you’ll get a little glimpse of what our hospital room TV watching has become. Farts and more farts!\u00a0\u00a0\u00a0\u00a0http:\/\/www.youtube.com\/watch?v=zz_TBklZ4uQ<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

I have to take a deep breath as I begin this as it’s taken me days to finally sit and write.\u00a0Things are not good. Jake’s disease is\u00a0growing stronger, much bigger. He’s in good form but there is just more and more with each scan, each biopsy. Jake’s scans have come back pretty bad and we’re … <\/p>\n

Continue reading “Time”<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-3185","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/jacobhickford.com\/index.php?rest_route=\/wp\/v2\/posts\/3185","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jacobhickford.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jacobhickford.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jacobhickford.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/jacobhickford.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=3185"}],"version-history":[{"count":12,"href":"https:\/\/jacobhickford.com\/index.php?rest_route=\/wp\/v2\/posts\/3185\/revisions"}],"predecessor-version":[{"id":3202,"href":"https:\/\/jacobhickford.com\/index.php?rest_route=\/wp\/v2\/posts\/3185\/revisions\/3202"}],"wp:attachment":[{"href":"https:\/\/jacobhickford.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=3185"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jacobhickford.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=3185"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jacobhickford.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=3185"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}