{"id":3064,"date":"2013-12-14T11:41:22","date_gmt":"2013-12-14T18:41:22","guid":{"rendered":"http:\/\/jacobhickford.com\/?p=3064"},"modified":"2013-12-20T08:51:03","modified_gmt":"2013-12-20T15:51:03","slug":"our-handsome-keeps-on","status":"publish","type":"post","link":"https:\/\/jacobhickford.com\/?p=3064","title":{"rendered":"Our Handsome Keeps On…"},"content":{"rendered":"

\"2013-12-13<\/a>This has been a roller coaster of a week for sure.\u00a0 To start off, it was Jake’s week of scans so that makes for lots of anxiety for all of us, lots of running all over the hospital from appointment to appointment, lots of pokes, waiting,\u00a0and fear, and some tears.\u00a0In the middle of it all Jake was moved back up in the trial, which is GREAT NEWS.\u00a0 But even that has\u00a0roller coaster’d this week and already changed.\u00a0 He was to be infused next Thursday but\u00a0we are now tentatively set\u00a0for Dec 31st.\u00a0 We go up, we go down. It’s of no fault of anyone, just some FDA\/trail findings that have to be reported and approved before the next child (Jake) can be infused (and it’s the holidays so things go slower). Jake’s bone marrow biopsy was yesterday and he’s sore today.\u00a0 They had a hard time getting to one of his sites so he’s moving a little slower than he usually does afterward.\u00a0 We’ll have those results back next week. His MIBG scan came back with a few sites a little darker but no new disease, it reported “stable disease”.\u00a0 Thank God!\u00a0 But his CT came back with a blow… there are new spots in the soft tissue. The liver lesions are back and there is a spot in the lung. The two liver spots\u00a0are pretty good size, the one in the lung is tiny\u00a0– they said it could be a virus but he hasn’t been sick and with the two lesions showing in the liver, we all have a gut feeling that it isn’t viral.\u00a0 Talks have\u00a0become more serious\u00a0and the volume has lowered while we sit in discussions so not to alert Jake of it all. He’s bouncing around\u00a0looking so healthy…\u00a0it’s just all so\u00a0unbelievable.\u00a0The\u00a0phrase “poor prognosis” is coming up more and more,\u00a0and the word “cure” m\"2013-12-13<\/a>uch less, so we tell him what he needs to know and we protect his little ears from too much information. Our Handsome keeps on because he doesn’t know otherwise.\u00a0 Henry and I have been highly emotional and while we should be relishing this time, there is such desperation and sadness… fear really. I find myself spending endless hours researching, trading sleep for information,\u00a0and diving deeper and deeper into the NB world… Henry too. I keep thinking of so many of our hospital family that would do anything to be where we are right now\u00a0and my heart hurts because they\u00a0will be one\u00a0less this year as they gather for Christmas.\u00a0 We have Jake’s toddler bed in our room, he’s been sleeping there since he was diagnosed. When he’s sick from all the treatments, it’s made getting to him so much easier.\u00a0 Early this morning I could hear him breathing so I scooped him up and put him in bed with us.\u00a0 He didn’t even wince, just nestled in and slept on. He’s such a cuddle bug and this momma needed to hold her baby.\u00a0 So, I’ll close\u00a0asking for your prayers…….. for joy in our household,\u00a0that Jake’s bone marrow\u00a0remain clean, for all of our kids battling, for our\u00a0cancer family that have had such loss this year, and for God’s blessing on this trial. We need a miracle!\u00a0 Specifically, I’d like to name some friends so that you too can pray boldy\u00a0for them… Grant, Taylor, Nolan, Pearl, Timothy, Charlie, Caleb, Bryce, Wyatt, Amani, Nathan M, Nathan L, Carson, Patrick, Hunter and so, so many others (those I didn’t list, forgive me).\u00a0 Please pray for their healing and protection, for pain free days, for joy and courage, and for\u00a0strength and guidance for their families as they care for their children and make decisions that only God can help with. We pray also for all of you, for you have blessed our family beyond measure. All our love and Christmas Blessings to you and your families!<\/p>\n

“He will be great and will be called the Son of the Most High. The LORD God will give him the throne of his father David, and he will reign over the house of Jacob forever; his kingdom will never end.” Luke 1:32-33<\/em><\/strong><\/p>\n

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Wishing\u00a0you\u00a0a little “quiet” so that you may listen and reflect on the greatest gift of all….\u00a0 http:\/\/www.youtube.com\/watch?v=EosUH0orVUg<\/a>\u00a0 “Here with Us” by Joy Williams<\/p>\n","protected":false},"excerpt":{"rendered":"

This has been a roller coaster of a week for sure.\u00a0 To start off, it was Jake’s week of scans so that makes for lots of anxiety for all of us, lots of running all over the hospital from appointment to appointment, lots of pokes, waiting,\u00a0and fear, and some tears.\u00a0In the middle of it all … <\/p>\n

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