{"id":2851,"date":"2013-11-04T21:08:47","date_gmt":"2013-11-05T04:08:47","guid":{"rendered":"http:\/\/jacobhickford.com\/?p=2851"},"modified":"2014-06-08T19:36:13","modified_gmt":"2014-06-09T01:36:13","slug":"ready-and-waiting","status":"publish","type":"post","link":"https:\/\/jacobhickford.com\/?p=2851","title":{"rendered":"Ready and Waiting"},"content":{"rendered":"

\"2<\/a>This will be short as I’m just feeling wiped out. Jake has been moved up near the top of the list for this GD-2 GRAIN Trial. As I understand it, kids are ranked as far as whether they have other courses of treatment available. The study is two-part… one part of the study is the genetically altered cells that will be put back into his body. The other part of the study includes a drug nicknamed the “suicide switch” or “kill switch”, depending on what documentation you read. It is a drug specifically designed to target the cells they put back into Jake and kill them if they go awry. Here’s the dilemma… the kill switch drug is being held hostage by the pharmaceutical company that manufactures it. They won’t release it while they fight over rights. Jake’s platelets aren’t recovering for the chemo they hoped to give interim but they are so close to being ready for the trial since they don’t have to be as high to start it. The lab has been working on his cells and they could be ready by next week to infuse them back into his <\/p>\n

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body BUT… the trial is now in jeopardy. Jake doesn’t have options… this is it! I’ve heard many times of lives being in jeopardy because of things like this but never have I really understood what this means. Today, I understand. Lives will be lost if this isn’t worked out. A group of kids are ready and waiting, they don’t have much time, their cancers are growing. The trial is ready to begin and there is nothing they can do but wait for legal teams to battle it out. How can our children have such little value? There are no words, all I can do is sit here with head in hands and pray. Please pray with us.<\/p>\n","protected":false},"excerpt":{"rendered":"

This will be short as I’m just feeling wiped out. Jake has been moved up near the top of the list for this GD-2 GRAIN Trial. As I understand it, kids are ranked as far as whether they have other courses of treatment available. The study is two-part… one part of the study is the … <\/p>\n

Continue reading “Ready and Waiting”<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-2851","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/jacobhickford.com\/index.php?rest_route=\/wp\/v2\/posts\/2851","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jacobhickford.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jacobhickford.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jacobhickford.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/jacobhickford.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=2851"}],"version-history":[{"count":8,"href":"https:\/\/jacobhickford.com\/index.php?rest_route=\/wp\/v2\/posts\/2851\/revisions"}],"predecessor-version":[{"id":3475,"href":"https:\/\/jacobhickford.com\/index.php?rest_route=\/wp\/v2\/posts\/2851\/revisions\/3475"}],"wp:attachment":[{"href":"https:\/\/jacobhickford.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=2851"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jacobhickford.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=2851"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jacobhickford.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=2851"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}