{"id":2536,"date":"2013-08-22T09:22:19","date_gmt":"2013-08-22T15:22:19","guid":{"rendered":"http:\/\/jacobhickford.com\/?p=2536"},"modified":"2013-08-22T21:11:11","modified_gmt":"2013-08-23T03:11:11","slug":"bald-beautiful","status":"publish","type":"post","link":"https:\/\/jacobhickford.com\/?p=2536","title":{"rendered":"Bald & Blessed"},"content":{"rendered":"

\"Headshave5\"<\/a>Here is part of our\u00a0bald and BLESSED family… on Saturday, we attended the Dynamo Game where they were hosting the Bald Is Beautiful foundation\u00a0and their annual Head Shave for Childhood Cancer event.\u00a0 We knew that Cameron and Daddy were going to shave, but what came as a beautiful surprise, is that Emma and Kate joined in also. \u00a0I’m still in awe. It’s\u00a0something that they will all\u00a0remember forever and we are so, so proud.\u00a0 The kids keep saying how soft their hair is and rubbing their heads – makes me smile everytime.\u00a0These are the amazing moments of love and encouragement that restore the spirit and fill the heart to keep pushing through the hard moments of this journey.\u00a0 And as for this journey… we met with our team at Cook’s on Monday.\u00a0 When they took us back to the exam room, we opened the door and there were dino toys all over the exam table… they were READY!\u00a0\u00a0Our Child Life\u00a0ladies were ON IT!\u00a0 A couple of things were for him to take home, and the others will be in his room when we arrive next week. What a way to relax Jake.\u00a0 We can thank\u00a0Saraben for being on top of things and communicating with\u00a0the Cook’s team on\u00a0the in’s and out’s of Jake.\u00a0\u00a0We LOVE her so much!\u00a0 We learned a lot… and we left\u00a0with a “to do” list (ie EKG, ECHO, some medical role play to do with J).\u00a0\u00a0We have to\u00a0start mentally prepping Jake\u00a0on all the tubes, chords, sitckies that will\u00a0attach to him all week.\u00a0 To give you an idea… he’ll have\u00a02 IV’s, his port will be accessed,\u00a0a blood pressure\u00a0cuff, sticky heart monitors, finger pulse ox, and a foley catheter.\u00a0 It’s a lot\u00a0for anyone, but SO MUCH for a child, especially a child who already has “sticky issues”.\u00a0\u00a0It sends him over the top to have the pulse ox and the chest monitors stuck to him.\u00a0 It was definitely a trip full of information\u00a0and we left with a\u00a0major\u00a0dilemma that must be\u00a0solved this week.\u00a0 Jake has an allergy to contrast.\u00a0 Which type we aren\u2019t completely sure since his CT and MIBG are always done back-to-back.\u00a0 In October, he had a bad reaction during scans and the decision was made to always pre-medicate him and not take \"2012-10-21<\/a>any chances. Because he’s medicated for both, we’ve never discovered the specific culprit. This treatment calls for 200 times the dose of a normal MIBG contrast scan. There is no way to ever\u00a0\u201cpre-medicate\u201d to offset that kind of dosage. So we are left figuring out which it is.\u00a0 If he doesn’t have a reaction to the MIBG iodine, we can assume it’s the CT contrast and we go forward. If there is a reaction we have to pull him.\u00a0While this will give us answers, it subjects him to medications and possible side effects.\u00a0 They really believe it will not be the iodine, that the CT is usually the issue, so we are banking on this.\u00a0You can see in the pic what it did to him – this is his back. It was on his chest and\u00a0forehead, as well.\u00a0A dose the size of what they have to administer could cause anaphylactic shock. So we start this little\u00a0“lab experiment” later today. This disease is just so monstrous. About the\u00a0time you think you are gaining ground, your feet slip again.\u00a0 But Jake is in GREAT spirits and feeling really well, and we are so\u00a0THANKFUL and BLESSED\u00a0for that. I sure wish we could fast forward 10 days and this was all done.\u00a0 But I keep reminding myself that this is just\u00a0a moment in time and we will look back on this in about 10 days\u00a0with it all BEHIND us.\u00a0 I ask for your continued prayers for\u00a0Rod and Wendy Kardorff and their family as\u00a0Sean’s funeral was today.\u00a0 The Priest said that Sean loved the candles on the alter, he felt that one day, he’d be one of the alter boys and he pictures him doing just that\u00a0in Heaven.\u00a0 I thought that was beautiful.\u00a0 Please pray\u00a0that as all of their family and friends gather around them, they are\u00a0comforted\u00a0and find celebration in\u00a0the wonderful life and love they shared. “The Lord will rescue me from every evil attack and will bring me safely to his heavenly kingdom. To him be glory for ever and ever.” 2 Timothy 4:18<\/em><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

Here is part of our\u00a0bald and BLESSED family… on Saturday, we attended the Dynamo Game where they were hosting the Bald Is Beautiful foundation\u00a0and their annual Head Shave for Childhood Cancer event.\u00a0 We knew that Cameron and Daddy were going to shave, but what came as a beautiful surprise, is that Emma and Kate joined … <\/p>\n

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