{"id":1874,"date":"2013-04-08T12:35:49","date_gmt":"2013-04-08T18:35:49","guid":{"rendered":"http:\/\/jacobhickford.com\/?p=1874"},"modified":"2013-04-08T12:46:48","modified_gmt":"2013-04-08T18:46:48","slug":"1874","status":"publish","type":"post","link":"https:\/\/jacobhickford.com\/?p=1874","title":{"rendered":"A Lot in One Day"},"content":{"rendered":"

\"J<\/a>Quick back to back posts, I know!\u00a0 But we\u00a0can use some prayers.\u00a0 The Docs made rounds a little bit ago and today is going to be full of changes.\u00a0 They took the pain pump away minutes ago and\u00a0they are reintroducing the oral meds (which he calls “poison”). They are\u00a0also\u00a0reducing his TPN, and lastly, they are changing out his chest port needle.\u00a0 That last\u00a0one is the one that I am most anxious about.\u00a0 As you all know he has such a hard time with access and de-access and we are about to\u00a0do it all in one day.\u00a0 A matter of minutes apart, actually.\u00a0 And all of this with a kid that has a very tender belly and a scar that almost circles\u00a0his front and\u00a0side.\u00a0 Rounds took place and in their calm, yet forceful Doc way, they\u00a0said “Mom, this is how we get you all home.”\u00a0DUH!\u00a0Followed with, “You just have to make him do it.” These are not our Docs, they are the young, rounding,\u00a0barely out of school Docs… AND HAVE NO KIDS!\u00a0\u00a0It really makes you feel about 3 inches tall\u00a0but madder than all get out.\u00a0 I would really like to hog-tie a few of them, throw them in the elevator and push the alarm button.\u00a0 Do they not know that\u00a0we want to go home worse than they want us to go home? The anxiety is building for Mommy.\u00a0 And to make things more tense, Saraben\u00a0(our Child Life Specialist),\u00a0Jake’s comforter, my back-up, my friend and help, the one who eases\u00a0my nerves as much as Jake’s, is\u00a0not here\u00a0today.\u00a0 CRAP!!!!!!!!!!!!\u00a0\u00a0Honestly, I’m\u00a0trying hard to hold back the tears and just remember to take it moment by moment.\u00a0 I \"NB<\/a>know that this day will pass and tomorrow will be a better one, but if you\u00a0will please pray that I keep\u00a0my hillbilly, hog-tying, eye rolling, want to curse you, self in tack, I would be so grateful.\u00a0 And bigger prayers that the de-access and re-access go OK, that we don’t hurt Jake in the process of trying to keep him safe and hold him down, and that he isn’t terribly traumatized for the rest of the day.\u00a0 These are just a few of the things that we cancer families live with and why we need better treatments… better yet, a cure!\u00a0 Please, please, pray for that too!!!!!<\/p>\n","protected":false},"excerpt":{"rendered":"

Quick back to back posts, I know!\u00a0 But we\u00a0can use some prayers.\u00a0 The Docs made rounds a little bit ago and today is going to be full of changes.\u00a0 They took the pain pump away minutes ago and\u00a0they are reintroducing the oral meds (which he calls “poison”). They are\u00a0also\u00a0reducing his TPN, and lastly, they are … <\/p>\n

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