{"id":1389,"date":"2013-02-02T14:21:07","date_gmt":"2013-02-02T21:21:07","guid":{"rendered":"http:\/\/jacobhickford.com\/?p=1389"},"modified":"2013-02-02T18:25:15","modified_gmt":"2013-02-03T01:25:15","slug":"what-im-here-for","status":"publish","type":"post","link":"https:\/\/jacobhickford.com\/?p=1389","title":{"rendered":"What I’m Here For"},"content":{"rendered":"

\"2013-01-31<\/a>Thankfully, we were home yesterday (Friday) so it\u00a0was a day to recover\u00a0as\u00a0Thursday was wicked for Jake.\u00a0 It wasn’t really any different of TCH\u00a0day… blood work, transfusions, the usual, but he just wasn’t in the frame of mind for it all.\u00a0 First he took a poke\u00a0to the arm for blood work and it didn’t pull blood right away so\u00a0our nurse\u00a0had to wiggle to find the vein – that had him\u00a0upset.\u00a0 Then when his counts came back low, we had to access through his port.\u00a0 It\u00a0just didn’t make for a good combination.\u00a0 The morning actually started out well.\u00a0 Big brother, Ryan came to hang out and be with Jake and he was bouncing around, making his Docs smile.\u00a0\u00a0They were giggling over\u00a0zombie brains and meatball sandwiches.\u00a0 But it’s\u00a0all about mindset and his changed fast as the\u00a0morning\u00a0drew on and\u00a0turned into\u00a0a very long, emotional, draining\u00a0day for him.\u00a0 At one point he just passed out on my chest with\u00a0those unconsious, continuous, muffled, puffy, breaths from crying so hard. When he finally passed out,\u00a0I was so\u00a0thankful for his rest and was able to close my eyes and rest\u00a0too. \u00a0We actually closed the pl\"2013-02-02<\/a>ace down.\u00a0 Other than one other family who was waiting to be walked over to West Tower 9 for admission, we were it.\u00a0 During our meeting with\u00a0Dr. Zage\u00a0and Dr. Foster, we finalized Jake’s newest game plan…\u00a0to keep his surgery scheduled for February 13th.\u00a0 His counts didn’t move much, in fact his ANC dipped a\u00a0bit, which is unusual, but they said there is always a margin of error, so to speak, and lots of things can make it yo-yo.\u00a0 Chemo 5 and 6 will be held till after he recovers from surgery.\u00a0 We head back in\u00a0Monday morning for his CT scan, then for blood work and transfusions.\u00a0\u00a0We have\u00a0a couple of specific prayer reque\"2013-02-02<\/a>sts that we would be so grateful for you to pray over…\u00a0first and the biggest, please pray that the mass\u00a0has been responsive to all of the chemotherapy – that it has shrunk and calcified enough that it isn’t terribly veiny and can be easily removed.\u00a0 Second,\u00a0Jake is really struggling with accesses.\u00a0 His terror\u00a0leading up to\u00a0his port access,\u00a0and the recovery time for him to calm down afterward, is worsening. We will be working with a trauma psychologist soon but until then, we are doing the best we can to keep him controlled and calm so he doesn’t hurt himself or someone else.\u00a0 Sometimes it takes 4-5 of us to handle\u00a0him, which makes it even worse and more frightening for him. Please pray that Monday morning, we have a calm access to his chest port – no\u00a0screaming, fighting, throwing\u00a0up.\u00a0 And last,\u00a0 please pray that he is calm and still for the\u00a0scan.\u00a0 The plan is\u00a0NO sedation.\u00a0 It’s a quick scan of about 10 minutes\u00a0and he can do this.\u00a0 BUT\u00a0if his access doesn’t go well, calming him down is almost impossible\u00a0within a reasonable amount\u00a0of time and they will push to sedate him.\u00a0 We’d prefer to have him awake.\u00a0 As with any sedation, there are always\u00a0risks and t\"2013-02-02<\/a>he less we have to go this route, the better.\u00a0 \u00a0We are anxious about this scan and we are anticipating good things.\u00a0 Dr. Foster always makes us feel so encouraged by what she sees with Jake and we are eager to see the images.\u00a0 She will call Monday evening with the results and we will see them\u00a0later\u00a0this week when we meet with his surgeon.\u00a0 As for now… we are home for the weekend, it’s beautiful and warm\u00a0here,\u00a0and he is running around happy, barefoot, in jammies… as it should be!\u00a0 We’ve played Wii, watched movies and the kids are all outside playing as I sit here and write.\u00a0 The girls are\u00a0shooting their bows, Jake is on the driveway, Cam on his skate board, Ry – don’t know where he is actually, but he’s around here somewhere, and Meg just dropped by for a minute too. It’s a good day!<\/p>\n

Emma wrote a poem for her brother, and she’d like to share….<\/p>\n

What I\u2019m Here For<\/strong>\u00a0by Emma Hickford<\/p>\n

Cancer is like a Dancer, it leaves foot prints everywhere. Jake won\u2019t walk the plank, he won\u2019t sit, and watch, and stare. Jake is a little warrior fighting cancer like a pro. Sisters are for hugs and kisses and that\u2019s what I\u2019m here for.\"2013-02-02<\/a><\/em><\/p>\n

Cancer pounces, you never know when it\u2019s coming. Jake is always playing, jumping, and smiling. He\u2019s innocent like children always are. And sisters are for hugs and kisses and that\u2019s what I\u2019m here for. <\/em><\/p>\n

Cancer finds a victim just like that dancer rat. Jake is like a nutcracker, because he will fight back. Jake is kind and caring he won\u2019t leave you behind. Sisters are for hugs and kisses and that\u2019s what I\u2019m here for.<\/em>\u00a0 And that\u2019s what I\u2019m here for.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

Thankfully, we were home yesterday (Friday) so it\u00a0was a day to recover\u00a0as\u00a0Thursday was wicked for Jake.\u00a0 It wasn’t really any different of TCH\u00a0day… blood work, transfusions, the usual, but he just wasn’t in the frame of mind for it all.\u00a0 First he took a poke\u00a0to the arm for blood work and it didn’t pull blood … <\/p>\n

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