{"id":1294,"date":"2013-01-22T19:29:22","date_gmt":"2013-01-23T02:29:22","guid":{"rendered":"http:\/\/jacobhickford.com\/?p=1294"},"modified":"2013-01-22T20:37:53","modified_gmt":"2013-01-23T03:37:53","slug":"still-here-2","status":"publish","type":"post","link":"https:\/\/jacobhickford.com\/?p=1294","title":{"rendered":"Stay or Go?"},"content":{"rendered":"

\"J<\/a>Here we are a week later… ((sigh))!\u00a0 Jake is doing much better, his energy is returning and his mouth sores are improving.\u00a0 Unfortunately, his counts aren’t climbing as fast as we’d like and here we sit.\u00a0\u00a0Yesterday, his Docs allowed him to disconnect\u00a0from his\u00a0lines\u00a0for a little while and he loved the freedom.\u00a0 SO much easier to get around the room when he doesn’t have to push a big pole around!\u00a0 His nurse also let him flush is\u00a0own line again – which he found “really, really\u00a0cool, mom”.\u00a0 And she let him turn his machines\u00a0back on.\u00a0 For a techy kid, this\u00a0kept his attention and had him asking lots of questions.\u00a0\u00a0He’s actually doing well enough that our nurse had to come in and gently ask him to start turning it down a notch as he was jumping on Emma’s air mattress\"2013-01-21<\/a>.\u00a0He’s lost a little weight again and you can see it in his face most but we’ll work on fattening up once we’re\u00a0home.\u00a0There are a few things that Jake is struggling with that we could use prayers for… MEDICINE being the biggest.\u00a0 He’s fighting us in a big way.\u00a0 His taste buds are so jacked up with the chemo that many of his meds gag him.\u00a0 In fact, this is affecting many of the things he drinks, as well, so getting fluids in him is a struggle.\u00a0 If you will please pray specifically that he can begin to tolerate taking the medicines and mostly, pray for\u00a0him to\u00a0cooperate in a way that doesn’t take tears, threats, arguments and pretty much WAR between mommy and son… I would be so grateful\"2013-01-21<\/a>.\u00a0We could use some prayers for keeping him hydrated, as well.\u00a0 At the moment we are unsure of how this will affect our “road map”.\u00a0 We were scheduled to be inpatient for our next chemo on Thursday for 5 days.\u00a0 That is pushed back for sure.\u00a0 I assume this will also push his surgery that is scheduled for February 13th.\u00a0 When we meet with our team later this week, we will know more and pass that information along.\u00a0 For now, we are hoping, PRAYING, that tomorrow is our “lucky day”.\u00a0 We’ve been hoping to go home\u00a0since Sunday so I feel kinda like rolling some dice at this point –\u00a0as it feels kinda like a crap shoot.\u00a0 Will we stay or will we go?<\/p>\n","protected":false},"excerpt":{"rendered":"

Here we are a week later… ((sigh))!\u00a0 Jake is doing much better, his energy is returning and his mouth sores are improving.\u00a0 Unfortunately, his counts aren’t climbing as fast as we’d like and here we sit.\u00a0\u00a0Yesterday, his Docs allowed him to disconnect\u00a0from his\u00a0lines\u00a0for a little while and he loved the freedom.\u00a0 SO much easier to … <\/p>\n

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