Rudolph

When we can, our preferred drive into the med-center includes a drive through one of my fave parts of town… the Rice area. Driving down the tree lined street with the sunlight streaming through the trees is just beautiful. Seeing people walk and jog and push strollers on

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the wide sidewalk along Rice University gives such a sense of commuity and belonging, even though it isn’t our neck of the woods. Although Henry likes to say he grew up in CA, he’s been in Houston since he was 10 – he’s more Houstonian than Californian. But I’m a Houstonian thru and thru… 3rd generation in fact! That makes our kids 4th generation and total Texasn! This is our city and although we’ve thought of moving from time to time, this is home. You look up and see these huge medical buildings and you know we live in a remarkable city. SO much diversity, so much opportunity, so much busyness on one side of the street and then everyday life, shopping, college students, mommy’s pushing strollers, people walking from home to work to play, right across the street. Driving down University Drive, there is a flower shop that always has the BEST stuff. As we’ve been in and out of the med-center so many times this week, we noticed these big, beautiful, reindeer made of sticks and twigs… they caught my attention and kind of remind me a little of some deer my mom had in our front landscape when we were growing up. At the beginning of the week, the front of the store’s yard was full of them… different sizes, lots and lots of them, with big red bows around their necks. But as the week has quickly gone by… so have the deer. And I wanted one!! BADLY! And once Jake saw them, he agreed. Of course, there is a story behind these deer I grew up with (I’ll save that one for another day) and once I pointed them out to Henry, he said “Oh no, we’re not doing the deer thing.” But I still wanted one and they were dwindling. So as we were heading out of the med-center the other day and back down our lovely, tree lined street, I sat pleading and he began to cave (big grins) . He only had to mention that maybe we’d stop tomorrow if they’re still there to make mommy happy. You know us women… maybe equates to YES! I’m confident that he expeted them to be gone. HA! No such luck becuase as we drove by, there were four left, and the begging commenced… Jake and Kate joined in too. What’s a Daddy to do??? Please, please, please, pretty please, he’s so pretty. Bet you can guess what’s now found a new home in our front yard? Yep and Yay! A reindeer stands so regal and lovely in our landscape.. Jake thinks the deer is “weeley, weeley cool”. AND, of course he has named him Rudolph (because what else does a four year old name a reindeer????). So today we introduce you to Rudolph… hope you like him… we love our newest member to the Hickford Zoo! Hope Gunner doesn’t get too jealous… =)

Tomorrow

Looks like tomorrow is “the day”. Jake will go into surgery first thing in the morning to place the catheter for his Stem Cell Harvest and as soon as he is out of recovery, they will hook him up to the machines and begin.  They’ve been tracking his counts, looking for special cells called CD34 cells.  These are the cells they will “harvest” so they can put them back into his body in a couple of months in order to rebuild his immune system for the transplant process.  He’s been slow to build these cells and they’ve been tracking them for the past week so they can catch them when they hit a certain level as there is a very small window that the cells hit their highest level, then they begin to drop.  They feel that Wednesday and Thursday will be “the window” for his best shot to capture as many of these cells as they can – they need millions. He’s ready to go.  His port is already accessed – it consists of a a 3/4″ needle in his chest and 6″ tube hanging and taped carefully.  Our prayer is that everything goes smoothly, that there are no complications, that they can get as many cells as possible in the shortest amount of time.  If they could get them all in one day – that would be our prayer. Most kids take two days, some longer.  They will hook him up until they get what they need.  They try to get enough for the first Stem Cell Transplant, plus extra for a future transplant procedure, just in case.  Unfortunately the relapse rate for Jake’s cancer is high and this is a precaution that they take… sadly, many more children than I’d like to say relapse. This reminds me… If you haven’t been on here in a couple of days, I ask you to scroll down and read Truth 365, then, share it… please.  It makes me think of something else… the fact we’ve been prepping Jake for this harvest has meant daily injections, as you know. In fact, because his cells haven’t mobilized in the amount of time they expected, we’ve had to fill extra days of his injection prescriptions (the shots continue until the harvest is complete).  I want to give you some information, not to make you feel uncomfortable or sorry for our situation but to bring more awareness… the shots we give him come in teeny, tiny vials, you can see in the photo.  Yesterday, we had to fill 4 extra vials to the tune of an additional $1906 on top of the nine vials he’s already gone through this past week and a half.  Do you see the itty, bitty vial in the picture?  They are tiny, 1ml vials BUT we only give him .5ml – then we must throw the rest out… wasted.  What in the world can be in a vial so small to cost that much money?!!! (In dollars, that’s almost $500 per vial!)  It’s infuriating and it’s wrong! Things MUST change!  The photo captures how our mornings start… our prep area for his shot… and in the background you can see the pharmacy of Jake’s meds.  It’s crazy!  Again, I tell you this for awareness, so that you might fight for these children, for these families who must find ways to make sure their children have what they need to battle their disease.  Do you think that if childhood cancer research had more than 4% to work with, there might be better or less expensive drugs for these families?  I do.  Please, please, visit  www.thetruth365.com to see how easy it is to help.  I will try not to harp in every post, I just want everyone to know that there is hope, we just have to “DO”………. for scripture says we are one body in Christ, we all have different parts, different jobs, but we work together to glorify God.

 

On a lighter note… the Daughters of the King visited our home last night to Christmas carol.  What a treat!  They were beautiful and joyful and what a gift it was to have them sing for us and then bless us with a special prayer.  I had to hug each of them… they were just precious young ladies.  We have been blessed by so many generous offerings of time and love, friends that want to show their support for our family… we are so thankful!  These are moments and memories that give us hope and courage each time we walk into TCH for a new procedure or appointment.  THANK YOU, THANK YOU!!!  I wish I could give every one of you a big, big hug.  Please know that we praise God each night for you and all of the help and comfort you bring to our family… we love you and send our deepest, most heartfelt appreciation for your prayers… we feel you!

Truth 365

Unless someone like you

Cares a whole awful lot,

Nothing is going to get better,

It’s NOT.

-Dr. Suess

I mentioned in on of my last posts that as I learn, I will share. I have more and I’d like to ask for your help once more… to pass along something special, something that will educate and inspire, and hopefully tug at your heartstrings. Our most powerful army to inform is now social media – it moves people to action faster and in ways that nothing else does. Truth 365 is a grass-roots video that has hit the media waves. ( www.thetruth365.org ) The goal is to flood Facebook, Twitter, You Tube and other social media sites… to provide awareness for childhood cancer and mobilize people to act. This teenager fought and won her battle, and has vowed to do something. She is smart and brave and fighting for change. How many of us watched and felt the fear and heartache of the Kony film last year as it went viral in a matter of hours and days? Because it touched us, we passed it on. Please watch Truth 365 and SHARE IT! PLEASE PLEASE, share it! Let this film educate and instill the same passion. Let it bring change!

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I know it’s lengthy but it’s important. It’s relevant, it’s real life and it’s happening right here in our country, our communities. It’s not just about Jake, it’s about so many children… 35000 children. If you don’t have time to watch the whole thing, skip around, you’ll miss a lot, but every part of it has impact, you’ll get something no matter where you land. Then go to

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the end, find out what you can do. It’s not hard or time-consuming, a few minutes of your time could be the beginning of making HUGE change…. changing the statistics, changing a dismal 4% . Childhood cancer is unpredictable and can affect any child… it could be your neighbor, your best friend’s child, your student, your family member. Our children are gifts from God, He only asks us to love them, to protect them… please help them!

Did you know???

  • In the past 20 years ONLY ONE new cancer drug has been approved for pediatric cancer. The drugs that currently treat childhood cancers were discovered 30 – 40 years ago and these drugs are toxic to the extent of causing future cancers and significant, permanent side effects. Many of these side effects are not seen in adults, only children, yet they continue to use these drugs, rather than develop newer, better, safer ones.
  • 35,000 children are currently in treatment for cancer.
  • Cancer success rates are based on 5 year survival rates, they are not a lifetime survival rate. Much of this due to the lack of treatment options, drugs, and new trials.
  • Nearly 2/3 of survivors experience later significant and chronic medical problems or develop secondary cancers that result from the treatment of their original cancer.
  • The causes of most pediatric cancers remain a mystery and cannot be prevented.
  • The average age of death for a child with cancer is 8. At least 25 percent of all children with cancer die.
  • Researchers estimate that 51% of moms and 40% of dads who have a child with cancer meet the criteria for “Acute Stress Disorder” within two weeks of the cancer diagnoses.

Please share Jake’s page so others will know, then view this film at www.thetruth365.org You can also follow them on Facebook.

And here are a couple of other resources…

Since someone like you,

Cares a whole awful lot,

It’s going to get better.

It will.

-Katie, from Truth 365