We’re still here… tomorrow will be one week. We’ve now spent 19 of the last 25 days in TCH. The days are dragging and Jake is so puny and blah. They did an ultrasound last night to check his belly becuase he was complaining of tummy pain. GOOD NEWS… nothing new! Today they are doing another CT since he’s had fever for more than 5 days.
It’s “standard and precautionary” but they want to see if there is infection or fungus – eww – that could be causeing his fever. All standard things from wiping out the immune system. He’s still neutrapenic and we are on continued lock down. There are two notices on our door reminding staff of his condition – they are to enter in plastic gowns and gloves. Reminds me a little of ET. It’s for his protection but also for the other children on the floor. Since he has a virus, he’s contagious and that can be dangerous.. They say the first round of chemotherapy is often the worse becuase it is such a shock to the body, especially the doses and longevity that he was on the pole. Some have said each time will get better, some have said that each recovery is different. For now, I’m praying that the first is right… that this will be the worse… all other’s will be better.
On a lighter side… thank God for good freinds who bring chocolate cake and wine! Last night Michelle brought much needed giggles. Thank you also to Tracy King for the delicious cake and Amy Gross for the Kung Fu Girl… you girls rock! Today, Pastor John visited and it was nice to pray and just talk. What a blessing our church has been for us. Charlie’s mom also came to visit. It was short but sweet and I am so thankful for these little things. (BTW I really need a good workout… they need to give us one of these unoccupied rooms and let us moms do a little Beachbody workin’ out!) 🙂
