{"id":615,"date":"2012-11-16T13:25:17","date_gmt":"2012-11-16T20:25:17","guid":{"rendered":"http:\/\/jacobhickford.com\/?p=615"},"modified":"2012-11-16T13:58:58","modified_gmt":"2012-11-16T20:58:58","slug":"road-map","status":"publish","type":"post","link":"http:\/\/jacobhickford.com\/?p=615","title":{"rendered":"Road Map"},"content":{"rendered":"

\"\"<\/a>Many of you have asked about the comment made in the last post regarding the transplant division.\u00a0\u00a0In my non-medical way,\u00a0I’ll try\u00a0to\u00a0give you an overview of Jake’s “road map” –\u00a0the term they use for his treatment plan.\u00a0 Jake will have 3 sessions of chemotherapy that include 5 rounds each –\u00a0numbers to paper that is about 15 weeks per session.\u00a0 Overall, that is\u00a015 rounds of chemotherapy, 15 different stays in the hospital at about 4-5 days each (not including surgery and other things).\u00a0 We are at #2.\u00a0 The treatments are 3 weeks from day zero, meaning they are actually\u00a0about 2 1\/2 weeks apart (as long as\u00a0his\u00a0counts recover properly each time and there are no infections\u00a0to throw us of – like recently).\u00a0 During this first 15 week session, they will\u00a0collect, or “harvest”, his own stem cells and\u00a0freeze them to be put back into his body later, thus the transplant division comes into play.\u00a0\u00a0This\u00a0will be done somewhere between chemo 4 and 5.\u00a0 At the end of the 1st session, they plan to take Jake\u00a0into surgery to remove the large mass.\u00a0 Right now the chemo is shrinking the mass in his abdomen\u00a0(the one about the size of a small\u00a0grapefruit).\u00a0 They feel that after 5 chemo treatments, this mass will shrink as small as it is going to.\u00a0 The remainder of the chemotherapies\u00a0won’t really make that mass smaller, those chemos\u00a0are to continue working on\u00a0all of the cancer in the bones and liver.\u00a0 After the surgery, Jake will have another session of chemotherapy – again, 5 sessions in Round 2 (another 15 weeks).\u00a0 At the end of this time the stem cell transplant will take place.\u00a0 This should take us somewhere into the summer hopefully, because we will need to farm out kiddos as Jake will be hospitalized in isolation on the 8th Floor for 30 days.\u00a0 My understanding is that we will then\u00a0go on to Round 3 of chemotherapy – another 5 sessions (15 more weeks), then radiation, followed by Accutane\u00a0treatments.\u00a0 This will finish up our first year.\u00a0 At that time, we will come together, assess where he is, and pray for NED (No Evidence of Disease).\u00a0 However, many children are not completely disease free in which case, treatments pursue.\u00a0If this is the case, our discussions will center on if we can\u00a0stay in Houston or head to one of four cities that continue with the next phase of Neuroblastoma treatments.\u00a0 All of this can change at a moment’s notice… it is his “road map” and we’re told to expect\u00a0detours along the way.\u00a0 We’ve already seen how it truly is day by day.\u00a0 It’s all just a big\u00a0lab project and sometimes I feel like\u00a0our son is the center of someone’s science fair.\u00a0 I just remind\u00a0myself that God gave us these things called science to\u00a0do good, to heal, to allow life to pursue… that\u00a0helps me\u00a0close my eyes and comfort\u00a0Jake when my baby is crying from\u00a0all the pricks.\u00a0 And this information\u00a0gives us something in which to plan from… sort of.<\/p>\n","protected":false},"excerpt":{"rendered":"

Many of you have asked about the comment made in the last post regarding the transplant division.\u00a0\u00a0In my non-medical way,\u00a0I’ll try\u00a0to\u00a0give you an overview of Jake’s “road map” –\u00a0the term they use for his treatment plan.\u00a0 Jake will have 3 sessions of chemotherapy that include 5 rounds each –\u00a0numbers to paper that is about 15 … <\/p>\n

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