Prayers

Written by Mardon Hickford. Posted in Mom's Blog

As I sit here, my radio is playing in the background as usual, and as usual it’s as though the DJ’s are playing everything just for me.  Healer by Kari Jobe is playing and reminds me that Jesus is our Healer, I must turn Jake over to him.  Jake’s had a hard two days. He’s neutrapenic, he has several mouth sores presenting themselves, feels blucky, the effects of the Nulasta shot make him ache all over, and he’s fighting back fever as hard as he can.  He’s hedged up past 100 for most of the day and a few times to our designated 101 that signals our “Go To Hospital” card,  but we are pushing the fluids, he’s cooperating, and somehow we get it back down to that 100 mark.  He doesn’t want to be admitted any more than we do.  He understands.  At four, he understands what this all means, and that breaks my heart.  He knows that if we go, he gets accessed, we “sleep over” there (as he puts it), and we stay for days.  For cancer kids, a neutrapenic fever admit means we stay a minimum of 48 – 72 hours while we wait on a petri dish to give us permission to leave.  We should have left already but just as we get ready to head out, his temp comes down a smidgen.  We could really use some prayers because it looks like we will end up in the ER tonight.  If we can just make it till 8am, we can go to our trusted 14th Floor Clinic side of TCH and get a direct admit to the 9th in West Tower.  Otherwise, we go to the ER for hours… with all of the flu and viruses and stuff that he can not be exposed to.  Please pray that we can hold out over night… or better yet, that this completely breaks.   She sings, “You hold my world in your hands”.  Oh, how true! So right now please pray with us… Father, PLEASE, I pray you take this from him!  Amen http://www.youtube.com/watch?v=Yzejd6r9DwE

Joy

Written by Mardon Hickford. Posted in Mom's Blog

J and Goo Goo Ga GaAs we travel this windy path, we curve and swerve and change direction regularly. For the most part we are still on track with a few little changes here and there. We saw our Docs on Thursday and the new schedule is to go ahead with chemo 5 admission on Jan 24, and after his counts recover, we will go in for his MIBG scan. From there, surgery is scheduled for February 13th. Of course, all of this can change at any time and is completely dependent on how his counts recover. They will do the MIBG just a couple of days before surgery to allow chemo 5 to have some impact and give time for  count recovery, as we can’t bring him into radiation neutrapenic. Radiation sees too many kids for too, too many reasons every day so Jake needs to have a bit of an immune system. He’s looking great! His numbers are bottoming right now, he’s neutrapenic, but his spirits aJ and Allenre soaring. This is EXACTLY what we want. I have such peace that we are going to see good things on his scan. And he’s had some really good playtime to keep his spirits lifted. He was able to play with his friends, Eryn and Allen, Wednesday night. And yesterday we had Lady Goo Goo Ga Ga (aka Angel Jeanne) and Dr. Bill come play. The belly laughs were pure joy! All three of them were all over the floor laughing and playing fighting dinosaurs. Jake was giving direction of how the scenarios should go, complete with dialog and names. My heart is happy to see him so full of joy and Mrs. Jean ALWAYS brings lots and lots of joy! This was in my reading this morning and it says it all… “Now the God of hope fill you with all joy and peace in believing.” Romans 15:13

:)

Written by Mardon Hickford. Posted in Dad's Blog, Hospital Stays, Mom's Blog

So we have a TV star!

[youtube=http://www.youtube.com/watch?v=UK8WBoRS6V4&w=450&h=300]

While we were inpatient this past week, Tina Daniels, our wonderful friend and Candlelight Lady came by with a Texan football for the kids on the floor to sign and take pictures that went in to a special video supporting our Texans. Jake’s in there twice! Lots of our friends made the video, including two of Jake’s favorites,

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Mackenzie and Pearl. Don’t you love seeing all the kids with their big smiles? They are all beautiful and amazing fighters, happy to cheer on their home team. Kate helped Jake write his name on the ball and then Jake drew a smiley face all by himself. As they say, the good with the bad… some yucky chemo with the joy of signing a Texan football for a real Texan football player who we are honored to say thank you to as he gives his heart and time to the kids of Texas Children’s Hospital and Cancer Center… go Kareem Jackson! (We have more pictures that didn’t want to upload to this post for some reason, so we’ll get them uploaded to the website somewhere else.