Today was busy. There were moments where I sat and cuddled but order and laundry was the name of the game today. Jake hung out on the sofa watching movies and his favorite shows, he’s tired and weak, but he’s glad to be home. He ate 1/2 of one of those little circle pizzas and most of a Capri sun. Oh, and some little Nestle Crunch candy bars – it is Halloween! And he had a visitor that really brightened his spirits… Mrs. Amos, his teacher stopped by with Halloween goodies from his classmates. He misses them so much and knowing they are thinking of him brings a smile every time. Now, I forgot a little tidbit yesterday so I’ll back up to go forward… yesterday we left the hospital on a pump. When I first learned that this was the plan for our release, terror set in. I’m NOT medical! I will now be responsible for flushing his line, changing out his TPN fluids, changing his tubing. Lord, help me! BIG breath prayer on that one. But they taught me yesterday and today was my day to do it on my own. A home nurse did come out to oversee my first “nursing experience”, and I did it! Whew! I can do this! We will be OK! Jake’s not sure what to think of this but I’m told he’ll get used to it. As for Halloween… we all went out together and took Jake to a couple of our favorite neighbors as he really wanted to be included – then he was ready to come home. We held him, he doesn’t have the strength to walk far but he wanted to go out. We stood at a good distance and I gently Purell’d the few pieces of candy in his bucket when we got home. The kid’s were troopers. It wasn’t the stash of candy they usually rake in but there is a silent “knowing” that this year is different. It will be different for everything. But we were together! AND, after the kids were in bed, I later found a Special Goblin had delivered about 10 POUNDS of candy in cute Halloween bags for each of the kids. Any chance of feeling slighted in the candy department just turned in their favor for sure… Thank you, Adriene!!!!!!!!!!! And a Happy Hickford Halloween it was!
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