The day didn’t start well… we had a very big outburst. Jake has HAD IT! Every person that walks in wants him to open his mouth.. it’s sore, it’s inflamed, he can barely talk, the ulcers are going down his throat, moving the tongue to say “ahh” is torture. He went off! On one of the Docs (the one he’s not particularly fond of) and on me. For a little guy who feels so bad, has NO energy, and is in starvation mode (with a body that shows it), he came out swinging! Slapping, scratching, kicking, spitting, screaming… I’ve never seen our son act this way. He’s been angry from time to time but he was looking to do damage. She didn’t know what to do. I told her that he was done and she agreed. He was so upset with me, saying that I need to help him, pleading with me not to let them touch him anymore. I understand, I’m his protector and I haven’t been that lately. In his eyes, I am enabling them to do these hurtful things to him. It was a moment for both of us and then he crawled in my lap and slept for three hours. I didn’t move, just held him, he was worn out. The GOOD NEWS… he woke in a much better mood. We did a puzzle on his bed and opened some gifts that he hasn’t had the energy to open. (Thank you to Henry’s soccer family!!! So many thoughtful, wonderful things!) I got a little smile through his mouth pain… oh my heart. 🙂 It was a good night… and even better… he ATE! Reddi Whip! I know, it isn’t much and it isn’t healthy but that’s what he wanted, it didn’t burn, and I’m a happy momma! It’s a step in the right direction and if he’ll eat Reddi Whip tonight, then who knows what tomorrow will bring… maybe yogurt! I will refresh the weary and satisfy the faint. Jeremiah 31:25
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